{“Going through things you never thought you’d go through will only take you places you never thought you’d get to”}

Two weeks ago I woke up in the emergency room. I spent the day there, being closely monitored while waiting for a bed. Later that night, after being settled into my room, it was suddenly flooded with physicians and clinicians. As they each chose a spot to sit or stand around my bed, I became... Continue Reading →

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{“I’m going to make everything around me beautiful, that will be my life”}

Being part of a community, such as the chronic illness or rare disease communities (or both!) is such a lifesaver. It has given me a place to share my story, my tears, my anxieties, my hopes and empower me all at the same time. On the other hand, I tend to get stuck in a rut of... Continue Reading →

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