{“Going through things you never thought you’d go through will only take you places you never thought you’d get to”}

Two weeks ago I woke up in the emergency room. I spent the day there, being closely monitored while waiting for a bed. Later that night, after being settled into my room, it was suddenly flooded with physicians and clinicians. As they each chose a spot to sit or stand around my bed, I became... Continue Reading →

{“You can’t go back and change the beginning, but you can start where you are and change the ending”}

Let me back track for a moment... In late January I was finally able to meet the Genetics & Genomic team, this is huge as I had been on the waitlist for thirteen months. There has been a lot of hesitation on my part, trying to figure out if sharing the outcomes from that appointment... Continue Reading →

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